Story
Name
Marlene Scheffknecht
Injury/Illness
Down Syndrome
Marlene was born 5 weeks early on 11/22/2023- she has Down Syndrome.
Marlene was born with a duodenal atresia, tracheosophageal fistula both repaired under 48 hours after birth (11/24/2023) and had a g-tube placed at that time. She was born with a Ventricular Septal Defect (03/27/2024), has had 3 esophageal dilations, 1 cath lab, and changed her g-tube to a GJ.
She has been hospitalized 8 times since birth (3 of which were 1 month long - still in one now over a month). We have been in the hospital intubated on a ventilator since Tuesday April 16).