Hello my name is Rosa. I'm married to my wonderful husband Mark., and we have a 12yr old girl  Athena,  9yr old boy Tyr, and a 5yr old girl Aurora. At about 19 weeks pregnant with my 4th child Freya,  I found out she has Tetralogy of Fallot. We also knew she had a malformation in her brain, but no confirmed diagnosis at that time. At 29 weeks pregnant,  I gave birth to her via  emergency c-section due to pre-eclamspsia.

Freya thrived with medical support for the first two months in the nicu, which is when we found out she had Dandy-Walker malformation. She began having tets spells with her heart and was sent to CVCC and was incubated.  While there, she got  Rhinovirus,  a hospital acquired  bacterial infection in her picc line and pneumonia. She had open heart surgery at 3 months and we expect her to need more down the road. 

Due to Freya's needs, I am not able  to return to work at this time. It is also expected that Freya's continuing needs will prevent me from being able to work in the future. We live in Cambridge MN and Freya is at Children' s Hospital in Minneapolis (46 miles). This has taken a toll on our family financially and we are asking for donations to help during this difficult time.