The Olmedo Family

So things are moving along Uli was approved to bottle feed and starting to eat baby food now as his health impoves little our home situation just doesnt seem to change now carless it has been an even bigger struggle to get the correct car for him

So we are finally home!! We are back in Minnesota and Uli is here at home were he belongs as well. After 3 1/2 long months that were so worth all the sacrifices we made as a family it paid off and Uli is home. But with that being said it is an adjustment for all of us me to be home and finding a middle a norm if being a single mom of 5 versus the mom of just Uli and taking care if them all and cooking and cleaning and paying bills that unfortunatly did not stop just because we were gone in a crisis so now we are close to eviction and having our car repoed I just need a breather so we can be happy that life looks so much brighter for Uli ❤️

So has been awhile and alot has happened Uli and myself are now in Delaware. Yes, Delaware! After being in the PICU for 33 days it was decided that Nemours in Delaware was the place we needed to be. Uli was flown there and knowing this was going to be along haul kind of thing I drove to be able to take things with us. I was not able to bring my other 4 children along for the fact I wasnt one going to change their whole lifes and everything they know and two they need to be at school snd be kids. So we have been seperated leaving them while little support and all of us with broken hearts. With this come more expenses such as gas and food for them and myself in two different places. 

We are now in Gillette for the last 25 days and waiting to hear from insurance if they will transfer us to a hospital in Delaware for Uli. We have faith that God is sending us in the right direction so that Uli can grow and thrive to be able to come home with the family that loves him. With this comes loses such as me mom will have to leave the other children I have in the care of my sister and miss them deeply. An with that is bills that still need to be paid and I will have to figure out support for myself in another state where I know no one. An I will also need to fly back and forth to visit my other children but I know this time will to pass and believe there is a reason for whatever comes so please open your hearts to help us out and even if you cant financially say a prayer for our family

So we actually got to go home back on 12/05 with a feeding tube and oxygen. Alittle scary for mom to take alittle 5lb baby home with all that plus morphine for his pain something I wasnt imagining have to give to my newborn baby but I will do whatever needs to be done to have him home with his family. The nice thing with him coming home we were able to get a care team that has a nurse visit twice a week to see how he is doing then have doctors visits through out the week. Unfortunately tonight we are back at the hospital to be able to do hernia repair 😔. As we were just getting pain under control. As a mom it is a worry to have your child put under but I know he is a fighter and we will get through this like everything else he has beat.

So we looked like we were on track to having hope of maybe going home in the next 2 weeks but unfortunatly may not be that way. Everything seemed to moving smoothly but we are back on Oxygen yet only alittle and more pain has surfaced and causing heart rate issues and breathing issues. Uli still tries to carry a smile through it all. He knows mama is right along side fighting for him.

Uli is making so much progress I was able to hold him the other day for the first time at 8 days old. I was so happy I started to cry because my whole pregnancy there was always the fear the reality that I may never be able to have him in my arms alive. Yesterday was my first time changing him which I didnt think with baby #5 would be any different but it was and I was nervous just changing his diaper causes him pain and as his mother breaks my heart but I know everyday he will get alittle better and grow alittle stronger. An also yesterday at 10 days old he had his first bath and to my surprise he loved it. He is so tiny but has so much personality already and is just a love bug every person that pases him cant help but stop and and call his name Uli and he always smiles he is a flirt at 10 days I am in a world of trouble when is older.