The Hoyle Family

Hi, Friends!

First, thank you for your continued help and support; mentally, physically and financially. It does take a village and we are happy to have you on our “crew”…Chloe’s Crew. As I write this update, our two youngest are learning to share (unwillingly, lol), older brother is in school, Dad is helping to answer questions from another special needs family (he LOVES to help!), and Chloe is resting.  If our experience has taught us anything, it's to share what we have learned to help others in similar situations. Playing a bit of catchup on updates; Josh and I are still caring for Chloe 24/7, without nursing in the house due to COVID and “respiratory season” upon us. This situation still isn’t without its challenges - deep, rejuvenating sleep being one of them and the never ending stress even while sleeping. We are constantly asking ourselves, “Is Chloe breathing?”, “Is she having a seizure?”, “Is she ok?” Not to mention, the question of where will we find financial stability next? We know God always provides, but not foreseeing how that provision will happen can sometimes be worrisome. Those are the kinds of questions that lead to our underlying stress on a daily basis. Thankfully, most families never have to experience these things or have to ask themselves those questions even once in a lifetime, but to us, those thoughts and questions remain such common topics on repeat. We are still finding ourselves bobbing through financial waters, but believe that this year will be a year of transformation, not just for us, but for others too.

We have been very fortunate and have all remained healthy and out of the hospital (other than regular check ups and specialty screenings for Chloe). It’s a relief to see that the extra lengths to keep everyone safe and healthy are paying off. Sometimes it can feel as though we are being overly cautious or cleaning everything unnecessarily, but it’s working! We also feel everyones prayers and those help tremendously as well. Although Chloe remains healthy, her body continues to have seizures on a daily basis. It is something we are in constant communication about with her neurology team, but it is a difficult thing to treat. Different parts of the brain require different medicines, and it’s not always the same parts of the brain that are having the seizure activity. Her seizures can also hinder her memory or capability to do certain things. Most days we "wake up" Chloe's brain and help her remember that she has the ability to move her arms and legs. We do this by stretching and moving her arms and legs; dancing, wiggling, or tickling, to remind her of what she can do. We hope to have her seizures more under control this year and believe it will happen!  

Just over Christmas, we were able to get out as a family to Spare Key's, Cookie's with Santa event, to see Santa, something our two youngest have not had the chance to experience. It was an extremely memorable moment for us all and thought I would share it with you, here. From our family to yours, thank you so much for your thoughts, prayers, help; physical, mental, financial, we appreciate you all so very much. If we could give you a hug, we would (we’re big huggers!)! Thank you!

P.S. For daily updates on Chloe and Family find us @heartsandbow on FB or #heartsandbow on IG.