The Christiansen Family

Hi everyone,

I’m almost 2 months old! The past two weeks have been busy! I got extubated and i’m now on nasal cannula for oxygen. I will continue to be on steroids for several months to help support the growth and development of my lungs. I have several brady spells every day where my heart rate drops but the doctors are hopeful that these will lessen as I grow. 

I’m back to getting my feeds thru my ng tube and it’s going well. Because I received my nutrition thru iv for so long my direct bilirubin is very high. My doctors continue to monitor and treat this with medications. My weight gain has been an issue this week. I have to maintain my own body temperature which has been hard. I wear a long sleeved onsie, a footie sleeper, a little hat, and then a fleece swaddle sac. My intestine complications make it hard for me to digest all my milk so my doctors continue to monitor this as well. 

This week mommy went back to work. This is very hard on her. Being away from each other all day is hard on us both. We will get lots of cuddles this weekend because my doctors have approved me to start oral stimulation. I was a rockstar at my first attempt to nurse. The doctors told mommy this will be a month long process if not longer but we have to start somewhere. 

Thank you for visiting my page for an update. Please keep mommy and I in your prayers. -Love Case 

June 23, 2024

Welcome back! Since my mom made my page I’ve taken another flight. This time from Children’s of Nebraska back home to Sioux Falls. My surgery to fix my PDA went very well in Nebraska. 

Unfortunately, this week we’ve had another setback. My doctors are watching me for something called NEC. I’m on antibiotics and won’t be able to have milk for 7 days. Please keep me in your prayers.

We want to thank each of you for your donations. Your generosity has made my mommy cry and each dollar is truly a blessing. We are so thankful! 

-Love, Case