"We Help Families Bounce And Not Break"

The Feller Family

Progress

12.0%

$100 of $826.00 goal completed


Brittanyleeighh

Our Story: My name is Brittany Feller and on May 15, 2018 I went in for a routine ultrasound to find out the gender of my baby. I found out that I was having a little girl, but I also found out that she has a rare heart malformation called Ectopia Cordis, where her heart is on the outside of her thorax. She also has slight pentalogy of the Cantrell where a part of her liver is protruding, doctors suspect this will fix itself after birth. She is 1 in a million. Baby and I will be relocated to Rochester on August 15th, where we will prepare for her birth via c section early September. I will be unemployed for an extended period of time, up to six months while she is in recovery. Dylan was born on August 31st and is in the CICU, she is currently on ECMO to recruit her lungs and her stomach has formed over completely and all of her liver and bowel are back inside and covered with skin.

Sept. 25, 2018, 10:27 a.m.

OR visit

This afternoon Dylan will be brought down to the OR to attempt to take her off of her ECMO machine. She will also get a dialysis catheter placed if she is able to come off of the ECMO. if Dylan is able to come off ecmo the next 24-48 hours remain very critical for Dylan as they try to figure out the best way to support her on her ventilator. Her heart is not seeming to be an issue right now as it is functioning 100%, she does have tetralogy, and she will need OHS to fix that within the next 4-6 months, or earlier if it begins to cause issues. The fact that her heart is on the outside does not affect her ability to survive, doctors are hoping that her lungs are able to work well enough to sustain life after taking her off of the life support.
For now, Dylan is resting and preparing for her big day

Sept. 24, 2018, 11:20 a.m.

3 week old update

Dylan was three weeks old on Friday, she is looking incredibly well and has done so much in the last three weeks. She has a very big week planned, and hopefully we can come off of Ecmo successfully this week. This morning she came off dialysis to prepare for her CT. Doctors were able to see what they needed to see on the CT which advanced their approach to taking her off of ECMO. Dylan will continue to be on ventilator support if she comes off of ecmo, and we will remain in the hospital for 4-6 more months in order to fix her chest and get it closed. She will also have surgery in the next 4-6 months to correct her tetralogy of the fallot. She’s got big months to come, but she’s making remarkable progress.